10.20.14

10/18/14 – ALS North Shore Walk to Defeat ALS – Playlist

Posted in Playlist at 6:33 pm by Administrator

Sound Check:

Better Off Alone – Alice Deejay

Billie Jean – Michael Jackson

Feel So Close – Calvin Harris

Long Cool Woman (In A Black Dress) – The Hollies

Safe And Sound – Capital Cities

Santeria – Sublime

Too Close – Next

 

Start Of Event

Happy (From Despicable Me 2) – Pharrell Williams

Let It Go – Demi Lovato

Compass – Lady Antebellum

Girl In A Country Song – Maddie & Tae

Play It Again – Luke Byran

Beware Of The Boys – Jay-Z Feat. Panjabi MC

Mmm Bop – Hanson (Request)

Fantasy (Album Edit) – Mariah Carey

Radioactive – Imagine Dragons (Request)

Mr. Brightside – The Killers (Request)

All I Wanna Do Is Make Love To You – Heart

All Around The World – Lisa Stansfield

Black Cat – Janet Jackson

Blaze Of Glory – Jon Bon Jovi

C’mon And Get My Love – D-Mob with Cathy Dennis

If You’re Gonna Play In Texas (You Gotta Have A Fiddle In The Band) – Alabama

Where I Come From – Montgomery Gentry

Where I Come From – Alan Jackson

Small Town Throw Down – Brantley Gilbert With Justin Moore and Thomas Rhett

Workin’ For MCA – Lynyrd Skynyrd

Stone In Love – Journey

Cradle Of Love – Billy Idol

Close To You – Maxi Priest

Dangerous – Roxette

Head It In A Love Song – The Marshall Tucker Band (Requst)

Blurred Lines (Radio Edit) – Robin Thicke Feat. Pharrell & T.I.

Moves Like Jagger (PO Clean Edit) – Maroon 5 Feat. Christina Aguilera

10/18/14 – ALS North Shore Walk to Defeat ALS

Posted in Events, Organizations at 6:21 pm by Administrator

This blog is dedicated to anyone who currently has, lost there battle with, care takers and loved ones of  Amyotrophic lateral sclerosis (ALS) or more commonly known as  Lou Gehrig’s Disease.

Here is just some basic information about ALS. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. For unknown reasons, veterans are twice as likely to develop ALS as the general population. There is no cure, and only one drug approved by the U.S. Food and Drug Administration (FDA) modestly extends survival.

FACTS ABOUT ALS

  • Every 90 minutes someone is diagnosed with ALS, and every 90 minutes someone loses their battle to this fatal disease
  • The average life span after diagnosis is 2-5 years
  • Military veterans are twice as likely as the general population to die from ALS
  • Living with ALS can cost more than $200,000 per year

 

Ever since I was young I wanted to do something extremely positive in my life. That is one thing I can say my family really instilled well in to me. I have gone through some pain and suffering over the last 16 of my 36 years of life so far. One of these events had a very profound effect on my life. At the time I did not know it but I would be handed a gift that will live on forever.

In April of 2006 I met the person that would forever change my life. That person is my wife Marci. She is always there for me like the rock I was for my family. She always has a smile on her face. She faces adversary in a way I have never seen and seldom ever cries or gets upset. During the summer, fall and winter of 2006 I got to know her dad Ray. He was funny, witty and could always make everyone smile. There were times I felt like he was a step dad to me when just having a casual conversation at one of his 4th of July cookouts he loved to have.

Sadly in 2010 we got some very devastating news. I remember the day really well. Marcis dad had been sick and the local area doctors could not figure out what was going on. Marci is the kind of person that takes charge of something when it really needs to be. She felt like they were not getting any answers so she called her Dads Dr. to see if he had any answers. She got some grave news that he could possibly have ALS. From her blog on her ALS page she writes “I remember when the Doctor told me he thought my father may have ALS.  I said so what’s the treatment like, his words hit me like a Mac Truck, “There is no treatment, it’s a progressive disease.”  Have you ever had to tell someone you love that they might have a disease that has no cure and their life expectancy at their age is another 2 years, maybe?” I got a phone call shortly there after with her crying uncontrollably. What can a husband say at a moment like that? To be honest nothing. I even started to cry, was in disbelief and denial all at once. I said to myself no not him.

Finally he went to Rhode Island Hospital to see a specialist. Had some very specific tests done and it was confirmed. He did have ALS. I do have to say I have never seen a family come together like my own in a time of urgency like this.

Over the 5 years I saw a person who built things with his bare hands (such as the house I live in), loved to fix cars, loved German Shepard’s and most of loved his family more than anything else in the world. Every time we would visit him (my wife Marci (his oldest daughter), Mindi (his youngest daughter), Jordan (Mindi’s son) and myself) he would light up like the only thing that mattered was Jordan. Everything else could fall apart and Jordan would bring him joy like I never saw.

Sadly we lost him on July 28th, 2011.

My wife put on her blog “When my father first passed away, I was angry and had a lot of fury and started our Ray of Hope Team and did a Walk To Defeat ALS three short months after his funeral.  The second year rolled around and I was in denial, I was still angry, confused, heartbroken and I didn’t have the courage and strength to think about all this fundraising stuff because to think about it meant to relive my pain more than I was.  The second year came and went and yep, still not thinking about it more than I had to.  During this time, my husband partnered with the ALS Massachusetts Chapter and has been their DJ for the 3 walks they hold each year and I sit home embarrassed that I have done nothing but wallow in my own grief.”

The year I was apart of Team Ray Of Hope walking to defeat ALS was an interesting one. I liked what I saw and who was there. All kinds of teams were there from all walks of life. All for one cause. A cause that gets over looked by a lot of people. While I was there I noticed there was a DJ on site playing music and taking requests. I thought how great would it be if I could do at even just 1 of the walks. My father in law loved it when we had a party of some kind and I was DJing it. Specially when I played a few of his favorite artists. I decided right then and there to find out who was in charge of the walks and see if I could DJ for at least one of them. When I started talking to the event coordinator and she found out that my father in law passed away we had an instant connection.

Ever since then (2 years ago now) I am proud to say I have done the Worcester, North Shore and Boston Walks to Defeat ALS. Each one is in unique. The best part is getting to meet all the wonderful volunteers that help with Registration, Food & a few other booths at the walks.

I am also proud to say that my wife has had a renewed fight to help raise awareness and funding for the ALSA. I honestly believe that it was due to the ice bucket challenge that went viral in the spring of 2014. This past North Shore Walk Peter Fretes mom Nancy was a guest speaker. I did not realize that they were from Beverly, MA. All I knew about the ice bucket challenge was it originated in MA by someone who has ALS.

Please make sure to check out the following websites.

To read more about ALS: http://www.alsa.org/about-als/

To read more about Team Ray Of Hope: http://web.alsa.org/site/TR/Walks/Massachusetts?px=3197852&pg=personal&fr_id=10173#.VEVSd–meoC